Everett Scott McCurry was born on October 12, 2022 — perfect, beautiful, and wonderfully made. From the very beginning, his life was marked by both incredible challenges and indescribable joy.

At 30 weeks pregnant, we learned that Everett had stopped growing in the womb — and then began losing weight. Doctors prepared us for the worst, scheduling an emergency C-section and warning that he would most likely be stillborn. But Everett defied every expectation and entered the world breathing — the very first of hundreds of miracles we would witness in his life.

He weighed just 4 pounds and remained at that fragile weight for several months due to his medical complexities. He was soon diagnosed with 1P36 Deletion Syndrome, a rare chromosome disorder, along with over eight severe congenital heart defects (CHD) — a combination so rare and complex it left doctors searching for answers.

He spent nearly a full year of his 16 months on earth in the hospital — split between Ochsner in New Orleans and Arkansas Children’s Hospital — bravely enduring battle after battle. The first four months of his life were spent entirely inpatient. We never got to bring him home during that time. Instead, we lived out of hotels and hospital rooms, navigating the constant unknowns of critical care. He relied fully on oxygen support and a feeding tube just to survive.

Everett underwent multiple heart catheterizations and had stents placed in his tiny heart to help stabilize him until he was big enough for his full open-heart repair. He endured procedures, intense treatments, brain surgery, and more needle pokes than most people face in a lifetime. Despite it all, he brought light into every room.

His strength was unshakable. His smile — even in pain — was unforgettable. And his life was a miracle in motion, every single day.